e-mail glitch – connected again

Hi to all interested and participating young people,

The mylifemyvoice@nd.edu.au e-mail address is back in action. We had a blip between 2nd- 20th May 2016. If you sent an e-mail to this address during this time, please can you re-send your message, or send an sms to 0415 301 635 if you’d like to check that your mail was received.

Big thanks! Vivienne and team

QLD Recruitment – this is it!

Thank you to the team at Lady Cilento Children’s Hospital for sending out flyers on Monday 4th April. We look forward to hearing from all young people in QLD who are not yet part of this study 🙂

Let us know your interest by e-mailing mylifemyvoice@nd.edu.au or sending a text “I’m interested” to 0415 301 635.

Thank you to all the amazingly wonderful young people and families who have returned questionnaires. A massive team effort ! Step-by-step we are  collating and comparing results to many other teenagers. We hope to let you know the bigger picture by the end of this year.

Here is the counter to date – 10th April 2016.

MLMV Numbers April2016 (2)


NSW recruitment!

Thank you to the Sydney Children’s Hospital Network clinics for mailing out information flyers. Welcome to all new from NSW! Thank you to the amazing young people who have already completed the questionnaire.

We look forward to hearing from all young people interested!

Get in touch by e-mail: mylifemyvoice@nd.edu.au or by texting “I’m interested” to 0415 301 635.

MLMV Numbers Feb2016

Enjoy the Summer Holiday!

Hoping you enjoyed a festive December and a good start to a great, new 2016!

We look forward to being in contact in the slightly quieter month of January.

Best wishes for some restful down-time this summer holiday 🙂

First visit to this site?

Thank you to the Duchenne Foundation team, and to all the teams at the Sydney Children’s Hospital, Children’s Hospital Westmead and Royal North Shore Hospital for sending out information flyers  across Australia and NSW.

If you’re keen to connect or would like more information from the study coordinator, you can sms “I’m interested” to 0415 301 635.

Taking part:

“It was a fun survey and () really enjoyed getting his own voucher. Thanks again.” South Australia – 14year old

If you’re keen to also be a part of this study, sms “i’m interested” to 0415 301 635.

THANK YOU to all helping with this research

Here are our numbers to date. We are extending recruitment. Thank you to all who are part of the MyLifeMyVoice research already. It is truly a massive team effort!

MLMV Numbers Dec2015