Autumn 2015

Hi! Welcome all new visitors.

We’ve just sent out information flyers to 14-19 year old teenagers via Princess Margaret Hospital for Children, Perth and the Women’s and Children’s Hospital, Adelaide.

We’re hearing young peoples’ voice in research. Teenagers in this study are describing life with a neuromuscular condition (NMD). Teenagers and young adults are also talking about their thoughts of health, wellbeing and learning to get ready for adulthood.

If you’d like more information about this study, e-mail Vivienne directly on, ring or sms on +61 415 301 635.