My Life My Voice

The Teen NMD Study

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  • Publications
    • Research POSTER of interview data
    • Research POSTER 1 of questionnaire data
  • Links
    • For Teens
    • TRANSITION Resources
    • For Young Adults
    • To Patient Organisations
    • To NMD Best Practice/ Specialist Centres
    • To Trial Registries
  • Video’s
  • It’s ok to talk
    • Hayden Stevens
    • Kelly Mauchline
    • Olivia Shivas
    • Ghaely Vinajama
    • Conor Murphy
  • What’s involved:
    • About who’s doing this research
    • Who is helping with this research:
  • The Questionnaire & the ICF:
  • Contact

To NMD Best Practice/ Specialist Centres

Centre of Research Excellence in NMD

Australasian Neuromuscular Network

Rare Voice Australia

Treat-NMD

Care-NMD

The Cooperative International Neuromuscular Research Group – CINRG

 

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